Abstract
Aim: To describe the level of agreement of people with ME-CFS using nursing diagnostic labels assigned by CdePS.
Methods: Cross-sectional descriptive study. Population: adults with ME-CFS diagnosis. Not probabilistic sampling method. Data collected between May and July 2022 via an ad hoc form. Nursing diagnostic labels assigned using the CdePS. To measure the level of agreement with them, a 5-point Likert scale was used. A descriptive analysis was conducted.
Results: 48 people completed the form. The 28 nursing diagnostic labels from the CdePS were assigned. The most frequently assigned label was “Powerlessness” (79,17%). 100% of people with the labels “Chronic Sorrow” and “Hopelessness” indicated to be strongly agreed/rather agreed with them. The highest disagreement levels was “Risk of Complicated Grieving” and “Risk of Loneliness” labels, where 75% and 60% indicated they strongly disagreed/rather disagreed with them.
Conclusions: Participants show high percentage of agreement with the nursing diagnostic labels by CdePS.
References
Lim EJ, Ahn YC, Jang ES, Lee SW, Lee SH, Son CG. Systematic review and meta-analysis of the prevalence of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME). J Transl Med. 2020 Feb 24 [cited 2024 Jun 15];18(1):100. Available from: https://doi.org/10.1186/s12967-020-02269-0.
Nacul L, Authier FJ, Scheibenbogen C, Lorusso L, Helland IB, Martin JA et al. European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (EUROMENE): Expert Consensus on the Diagnosis, Service Provision, and Care of People with ME/CFS in Europe. Medicina (Kaunas). 2021 May 19 [cited 2024 Jun 15];57(5):510. Available from: https://doi.org/10.3390/medicina57050510
CONFESQ, Asociación Nacional DOLFA, SFC-SQM Castilla la Mancha, ASSESCA. Documento revisión "Guía de actualización en la valoración de Fibromialgia, Síndrome de Fatiga Crónica, Sensibilidad Química Múltiple y Electrosensibilidad. Encefalomielitis Miálgica/Síndrome de Fatiga Crónica. 2a ed. Madrid: CONFESQ, DOLFA, SFC-SQM Castilla la Mancha, ASSESCA: 2021. Available from: https://confesq.org/wp-content/uploads/2020/10/Contradocumento-SFC-EM-VERSI%C3%93N-COMPLETA-1.pdf.
Committee on the Diagnostic Criteria for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome; Board on the Health of Select Populations; Institute of Medicine. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness. Washington (DC): National Academies Press (US); 2015 Feb 10. Available from: https://www.ncbi.nlm.nih.gov/books/NBK274235/ doi: 10.17226/19012.
National Institute for Health and Care Excellence. Myalgic encephalomyelitis (or encephalopathy)/ chronic fatigue syndrome: diagnosis and management. NICE Guidelines. 2021 Oct 29. Available from: https://www.nice.org.uk/guidance/ng206
McManimen S, McClellan D, Stoothoff J, Gleason K, Jason LA. Dismissing chronic illness: A qualitative analysis of negative health care experiences. Health Care Women Int. 2019 Mar;40(3):241-258. doi: 10.1080/07399332.2018.1521811.
American Nursing Association. Nursing’s Social Policy Statement: the essence of the profession. 2010 edition. Washington DC: American Nursing Association, Inc; 2010.
Herdman TH, Kamitsuru S, Takáo Lopes C, editors. Diagnósticos enfermeros. Definiciones y clasificación. 2021-2023. 12 th. Barcelona: Elsevier España, S.L.U.; 2021.
Lunney M. Critical Need to Address Accuracy of Nurses’ Diagnoses. OJIN: The Online Journal of Issues in Nursing. Jan 31 2008 [cited 2024 Jun 15];13(1). Available from: https://doi.org/10.3912/OJIN.Vol13No01PPT06
Brito-Brito PR, Rodríguez-Álvarez C, Sierra-López A, Rodríguez-Gómez JÁ, Aguirre-Jaime A. Diseño y validación de un cuestionario para el diagnóstico enfermero psicosocial en Atención Primaria [Design and validation of a questionnaire for psychosocial nursing diagnosis in Primary Care]. Enferm Clin. 2012 May-Jun; 22(3):126-34. doi: 10.1016/j.enfcli.2012.03.001.
Sanz-Sánchez I. Validación y adaptación de un instrumento de medida de funcionalidad biopsicosocial en el ámbito sanitario rural [dissertation]. La Laguna: Universidad La Laguna; 2017.
Brito PR, Aguirre A. El diagnóstico psicosocial desde una perspectiva enfermera. Barcelona: Elsevier España; 2014.
Fennell PA, Dorr N, George SS. Elements of Suffering in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: The Experience of Loss, Grief, Stigma, and Trauma in the Severely and Very Severely Affected. Healthcare (Basel). 2021 May 9 [cited 2024 Jun 15] ;9(5):553. Available from: https://www.mdpi.com/2227-9032/9/5/553.
Fricker M. Injusticia epistémica. El poder y la ética del conocimiento. Barcelona: Herder; 2017.
Radi B, Pérez M. Injusticia epistémica en el ámbito de la salud: perspectivas desde la epistemología social. Avatares Filosóficos. 2019; S1(5):117-30.
Gordon M. Assess Notes Nursing Assessment & Diagnostic Reasoning. Philadelphia: F.A. Davis; 2008.
Girao AJ. Diagnosticar para cuidar. Correo AENTDE. 2008 Dic;11:13-20.
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.
Copyright (c) 2024 RqR Quantitative and Qualitative Community Nursing Research